Well, Darling Ones,

The day I was anxiously anticipating has come & gone.

Yesterday was my Social Security disability hearing. Three years after my stroke, two(ish) years after applying, two rejections, and roughly 15 minutes of a hearing, the judge granted my claim for Social Security disability.

Ya girl is getting on the dole!

I’m relieved and overwhelmed. My friends and fam are over the moon for me. My mom even cried when Sister #4 told her. I love the way my friend Em responded, “Can I go back to just worrying about the dumb stuff you do instead of your basic survival?”

Permission was granted.

Today I am out of sorts. My head is extra wooshy, making me more discombobulated than usual. My theory is that my body has gotten so used to the stress and anxiety of imminent financial ruin that it doesn’t know what to do now that it has escaped danger.

Of course, being the half pessimist, I won’t fully believe the saga is truly over until there’s money in the bank. According to my lawyer that might as early as June. But there’s no guarantee. He apologized profusely for the delay and I felt bad for him. It’s not his fault the government moves slowly. Clearly he has dealt with a lot of angry clients in the past. I was just happy the judge gave us his decision on the phone, that was unexpected.

I was a little bummed the judge didn’t wanted to hear my soliloquy on the importance of punctuation in both HTML code and English writing. My ode to the period would have made grown men weep with its beauty.

My lawyer warned me the day before the hearing that nobody ever got in trouble for saying too little. HRMPH! I kept my answers short and to the point and did not go into what a tragedy it is lose the ability physically read books. While I love and give thanks to audiobooks, it’s not the same. You, the book in your hands, the words on paper, that cannot be duplicated.

Losing your longest-held, most-comforting ritual in your 50s sucks rocks. I deserve financial compensation. Beverly Cleary give me strength!

So now we cross our finger that I have enough money for the next few months and then we move on to figuring out what comes next when you’re not constantly worrying about money. This should be fun!

Not so dolefully yours,
Jodi

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Hiya Darling Ones,

How goes it?

Here in the North Star State we’re in for a blizzard that could drop anywhere from 4-22 inches of snow on us according to the weather terrorists. Of all the things I’m good at, hunkering down is probably what I’m beat at. An introverted spinster who’s lived alone for 25+ years? I am the Serena Williams of hunkering down.

My hunkering plans include catching up on my many ignored crochet projects. I’m a month and a half behind on Temp Blanket 2026 and the less said about the State Fair one the better.

I’m very much the distracted boyfriend meme and Art Practice is my new obsession.

Do you know you can put colorful blobs and squiggles on stuff and be released from all that ails you for a brief and glorious moment? YOU CAN! It’s astounding.

Right now I’m copycatting things I see on Instagram (see above), doing the watercolor sketchbook, and working through a YouTube drawing class.

For the most part, I’ve been arting at least once a day. This week hasn’t been the best with the time change & an especially difficult eye treatment, but I still squeezed in some.

Taking up art feels like the best thing I’ve done for my poor damaged brain and janky body since I’ve existed.

Pre-stroke writing and reading were my favorite form of escape. I could go someplace else, immerse myself in someone else’s life. Post-stroke it isn’t the same. While I’m most grateful for audiobooks and the library that lends them to me, it’s not the same as reading a paper book with your eyes. The experience, for me, isn’t as immersive. I’m still aware of my body and its surroundings. This holds true for writing too. Even as I type there’s a part of my brain constantly noticing the tension and heaviness in my right side.

When I’m painting or drawing that noticing is much less frequent and I’m able to be more forgiving with myself. The heaviness and tremor are still there, my scoop will forever be floppy. But my brain is also noticing how the color looks on paper, how the watercolor moves across the surface. It’s thinking about what I should do next, what color, what blob, what squiggle. I can go entire minutes without thinking about my scoop or noticing my distorted vision. It is the best. THE BEST!

I’ve had a fraught history with my body. Last summer Sister #2 made a comment about how she could tell I don’t feel safe in my body. I don’t know if I responded, but I’ve thought about that phrase a lot, “safe in my body.”

Was that something people feel on the regular? What does it really mean? Have I ever felt safe in my own body? I would tentatively say, no. My body has never been a safe space. It has been a constant source of attention, often cruel and unwanted. I’d venture to guess that part of the reason I’ve chosen to live alone for most of my adult life is to protect me from that attention, even from well-meaning people who love me.

You know what though? When I’m arting I feel safe in my body. Is this how people walk around all the time with their meat sack not causing angst and fear? I hope so, because it’s kind of rad even when I experience it in teeny, tiny amounts.

Mind blown,
Jodi

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Hola Darling Ones,

Tomorrow, March 6th, marks the third anniversary of my stroke. Time flies when you’re learning how to be disabled, struggling with money, and grieving.

Three years since I called 911 and none of those men believed me when I said I had a stroke. Three years since I heard the cop making fun of me, “She thinks she had a stroke. She googled.” All cops really are bastards. I will never not be a hot ball of fury about how those first responders treated me.

Three years since I walked or drove or generally felt normal inside my own body.

It’s kinda nice the world outside of me has been pretty tame allowing me a singular focus on getting stronger. No wars. No ongoing military occupation of my state where thugs abduct or murder neighbors. No fascist overthrow of the US by the dumbest and cruelest humans led by an evil delusional gameshow host.

On this strokeaversary I’m so proud of how far I’ve come. Reading those early days after the stroke is rough. I was so beaten down and scared.

But even a damaged brain can’t keep a good spinster down.

Aside from my finances (my dole hearing is April 10) and the fascism, I’m doing pretty well. I think perhaps, maybe, I have finally accepted that this is the way things are gonna be and status quo is not a bad thing. Or maybe this is like grief and I will always be accepting it in some way.

Now that I’ve stopped beating myself up for failing at recovery, I’ve got a lot time on my hands, and so I’m starting an art/creative practice like its my job.

While I still crochet and write, it’s not the same as before. When I’m engaged in those activities there’s a whispering voice saying “this weird. why is this weird? what is wrong with you?”

To get that voice to shut up already I’ve taken up water colors. I want to try some drawing and collaging too. I’ve always been drawn to visual art and envious of those who create it, but haven’t taken an art class since seventh grade. Instead, I drifted toward photography and graphic art in school. That all came together when I discovered blogging and so I let crochet be my unplugged creative way to calm the brain weasels.

Now I need more. My brain weasels are bigger, damaged, and rowdy. I wanted something relatively cheap I could do with my hands. Something I haven’t done before.

My magical thinking has decided this new practice will be good for my Floppy Scoop and work some kind of wizardry my brain. It won’t fix the wooshiness that is my constant state of being, but maybe it will make it a little less gusty?

I’m only five days into the practice. It took me awhile to find cheap/free supplies and get over the fear that I’d art wrong and the world would end because of it. Right now I’m following a 30/60-day sketchbook challenge from Andrea Nelson on Instagram.

This old spinster is learning some new tricks. It’s fun to start a new practice and challenge myself to try something new that I’m not good at. Be gentle when I start subjecting you to all my creations. I’m just a baby at this.

Happy to be still kicking,
Jodi

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Hi Darling Ones,

Using a wheelchair “out in the community” is a trip.

My unjanky wheelchair arrived Thursday, delivered by a man with tiny American flag jewelry on his shoelaces. I’m not entirely sure what to call it. It was like this little flag pins politicians wear on their lapels, but on the laces of his brown leather shoes.

Because nothing scares me more than being alone in my house with a white guy my age, I learned so much about him. He has two daughters, one’s 26, he’s 48 and 5’10”, and has worked in medical mobility/medical equipment for 20+ years. His wife is much shorter than he is but her legs are the same length as his. He tried community college in Ely, but it wasn’t for him. Sometimes his older female clients flirt with him (to which I replied, “that’s creepy”). He likes taking things apart and putting them back together again. He has to do that frequently with motorized scooters. He agreed with me that most medical equipment is not built for people 6’5″.

Anxiety is fun!

Now that Ruby Vroom (dubbed so because she’s red like my truck and vroom because it’s funny and also “Ruby Vroom” is the name of Soul Coughing’s first album) is in my possession, Sister #4 is taking me on small outings so I can build up arm strength.

I need to get my stamina up for the John Cougar Mellencamp concert in July and the State Fair in August. That’s right, ya girl is FINALLY gonna see Johnny Cougar in concert. He’s playing in Shakopee at the, as yet unfinished, Mystic Lake Amphitheater. It’s practically my backyard and it’ll be a gentle first concert in Ruby Vroom. Sister #4 got me tickets for my birthday. I told her I’d get the chili dogs.

For Rube’s inaugural outing I got my hair cut and then went to Trader Joe’s.

And, as I said, it was a trip.

Aside from a short trip to Michael’s last summer, I haven’t been inside a store since the before before times. We’re talking before COVID and before my stroke.

I don’t know if it was the wheelchair that made me invisible or if people have grown alarmingly inconsiderate and unaware since the plague. People acted as though I wasn’t even there. There eyes glided right over or through me. They didn’t move or make even the slightest accommodation for me and Ruby.

Normal-sized Sister #4 said this was how people always acted. I was floored. Rarely, in my life, did I go so unnoticed. I was used to being stared at wherever I went. People moved out go my way either consciously or unconsciously because of, I suspect, my size. Maybe people can tell when someone is looming above them.

Is this how y’all live on the regular?

There was one woman who did see me, thankfully. I got stuck in the flower section, Sister #4 away in the bread aisle, and could not get out of a tight corner. There were jackasses behind me so I couldn’t reverse and a bucket of purple flowers in my way so I couldn’t make the turn. A kind woman saw my distress and moved the buckets for me.

Aside from nearly taking out an entire display of tulips due to bad steering there were no major calamities. Sister #4 did almost dump me outta the chair trying to power me over a curb cut, but we recovered, barely.

She was pushing me so hard my ass came off the chair and I was nearly horizontal. “Oof,” I said as I eyed the nearing pavement before falling back into the chair. A young woman watched the whole thing with a bewildered look on her face as Sister #4 and I burst out laughing so hard she couldn’t breathe and I was crying.

“Oof,” I said repeatedly on the way home laughing and crying the whole way.

Getting there,
Jodi

P.S. I’m too frugal for Trader Joe’s goodies. Thanks to my apathy for tulips I only spent $28 on carrots, potatoes, beans, coffee, and a small bag of dark chocolate peanut butter cups. If they had dahlias or zinnias I’d be bankrupt right now. The flowers sure did smell good though and that was enough.

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Hello Darling Ones,

Today was the big meeting with my Social Security Disability lawyer. It was an appointment I’ve anticipated for ages. I’ve spent a lot time imagining how it would go and making a case for why I should qualify for disability.

Seriously, I wasted hours upon hours searching for the best way to describe the feeling inside my head, the distorted vision, and the right-side fuckery.

Good thing too, because the call lasted exactly six minutes and I probably said 100 words other than yes (seeing neurologist & retina specialist since June 2025) and no (to medication side effects).

He asked me why I was unable to work and I explained how the macular edema distorts my vision so that I lose letters and punctuation when reading.

“That’s important in your work,” he said.
“Yeah,” I said. “It is.”
“Well, we have what we need,” he said. “I’ll call and get you ready a few days before you hearing in April.”

That was it.

Six minutes.

I was prepared to talk about the distortion in great detail. I was going to explain how I used my giant TV as a computer monitor for a few weeks but the letters were just BIG & distorted and no easier to read. There was an entire soliloquy about sans-serif vs serif fonts and the difficulties each presented, an ode to the importance of quotation marks in HTML.

So now I’m even more curious what he’ll say in the hearing and how it will differ from the case I laid out in my disability application. Twice. It ought to be super compelling. Otherwise why would the government require most disability cases get to the hearing stage where you need representation? It wouldn’t possibly be so people lose hope and give up, right?

I love government bureaucracy.

Hoop jumpingly yours,
Jodi

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